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September 30, 2009
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November 22, 2009

Riddle Me This

When the photo arrived in my inbox, I clicked on it and thought: The image is like a riddle.

What is colorful and varied yet single-minded; laughing yet quite serious; shaking and quivering yet not afraid?

The answer smiled back at me in the picture of my fellow graduates of the Parkinson’s Disease Foundation’s (PDF) Clinical Research Learning Institute.

The men and women who came to immerse themselves in all that is PD came from all walks – literally and figuratively – each with our unique gait and each with our story. A dancer, a doctor, a physicist, a pharmacist, an architect, an artist . . . mothers, fathers, grandparents. We came from as far west as California and Washington, and east from Rhode Island and North Carolina. There were southerners from Alabama and Texas and northerners from Massachusetts and New York. Despite our varied backgrounds, we had one focus: learning about better treatments and the path toward a cure for PD.

A sense of humor prevailed across the two-and-one-half days. Among the researchers and doctors presenting, even the statistician cracked a joke or two. But none of us could be more serious when asking questions about better treatments and the path toward a cure for PD.

And in that room full of brilliant-minded professionals there existed signs of nearly every symptom of PD. One could get discouraged, or opt to reach into the sense of humor bag and say, There was a whole lot of shaking going on, or that Shaking up is hard to do. I, with these fearless individuals, will reach even deeper, though, into pockets of courage and dedication. The latest and greatest about better treatments and the path toward a cure for PD will involve us.

How honored I am to have been a part of the Institute and to join this team who, together, may very well solve the riddle that is Parkinson’s.

(Check out the PDF web site article for more info on the Institute:)

http://www.pdf.org/en/media_pr/release/pr_1256158327

2 Comments

  1. Anonymous says:

    I am an attendee of the 2010 CRLI Institute and could not have said it better myself. I feel just as you do about out conference and would like to start a blog.

    I live in an area where there are very few(none) support groups and those that I have been asked to mentor do not want to speak to anyone in large groups so I meet one on one with several persons with PD. I’m hoping that a blog would lay the ground work for a successful support group.

    Thanks for any advice you could give me.
    Carol

  2. Renee says:

    Hi Carol,

    Congratulations on graduating from the CRLI!

    I love the idea of a blog to initiate a suppor group. I say go for it. Your readership will follow, and it will grow.

    The few suggestions I have are:
    – have several entries written before you begin, even if you post only one at a time (that way you can keep the momentum going)
    – I like to vary lengths, short posts following lengthier ones
    – add URLs to other sites as well as photos to maintain a level of info sharing (rather than all op ed pieces)
    – invite guest bloggers
    – place a copyright notice on the blog (I’ve seen whole posts of mine on other sites without by credit to me/my web site).
    – have fun!

    Please let me know if I can be of any further help. Good luck!

    Warm wishes,
    Renee

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