September 21, 2010

Living Room

For four days, I’ll be immersed in all things Parkinson’s at the World Parkinson Congress in Glasgow. Thousands of patients, caretakers, researchers, health care professionals, pharmaceutical reps, will converge on this Scottish city to focus on this degenerative neurological disorder. And I’m okay with that. Typically, I would resist such an event as I would retract from a serving of Lima beans. Good for me, but hard to swallow. This state of mind of openly listening to, absorbing, witnessing the numerous, nasty effects of this disease has more to do with all that will be around me rather than what’s being served up: I’ve never been to Scotland. I intend to enjoy a few days at the front end of the conference simply being a tourist rather than being someone with PD. In addition to the plethora of medical presentations from around the world, there are a number to choose […]
September 6, 2010

New England Parkinson’s Ride, Sept. 11

If you happen to be in the Old Orchard Beach, Maine, area this Saturday, September 11, look for us on the triple during the New England PD Ride. Come and cheer us on! There are 195 riders this year! That’s nearly double last year. Still, we’re easy to spot as the only whole family on one bike. For some training pics and stories, go to The rides begin at Loranger Middle School, 148 Saco Ave., Old Orchard Beach. Team Mama will be riding Fred on the 50-miler, which heads out at 9:30 am.  The ride ends at The Pier, at 1 West Grand Ave, Old Orchard Beach. I expect we’ll roll in between 1:30 – 2:30. Here’s hoping for good weather! But even if the weather isn’t postcard-perfect: Rain or shine, Fred rolls Fifty miles uphill and down Rain or shine: a cure.
August 21, 2010

Mirapex, Here a Vex

At my last checkup with my neurologist, he ran through the standard office visit litany of tests. I touched my nose, I puffed my cheeks, I walked to the end of the hall and turned and walked back. When he turned his wrists and said, “Show me how you change a light bulb,” I smiled. My arms at my sides, I replied, “I ask my husband to do that.” Though he didn’t laugh out loud (I did notice, however, perhaps a slight effort to remain his serious self), I still like him. I believe it’s important to have a good relationship with my doctors, where I can trust that they are not only listening, but truly hearing what I’m saying. No joke. So during the appointment, when I mentioned that sleep (or lack thereof) ranked highest on my list of disruptive symptoms, he nodded. He asked a few questions. He […]