I need to cut nuts out of my diet. Cheese, too. Sadly, red wine as well. Ditto on the avocados, soy products, vinegar, dried fruit. If I included any of the above in meals or snacks, a monstrous migraine ensued. This recent phenomenon of light-sensitive, eyeball-searing pain was a tag-along side effect of one of my meds. I hadn’t expected such a severe reaction to what was considered beneficial to take. Emerging from a particularly nasty skull-exploding episode, I shuffled into the kitchen, slumped at the counter, hungry, drained, and wondering what I could possibly eat that wouldn’t, quite literally, go to my head. Crackers? No, there are nuts and soy it the ingredients list. PB&J? No, the protein in the peanut butter would battle with my meds, not to mention nut’s place on the anti-migraine list. I boiled a pot of white rice and daringly added a touch of […]
In a recent issue of Good Housekeeping, Michael J. Fox answers an interview question about the challenges of living with Parkinson's. He responds that one of the most awkward aspects is that people don't know what to say. Perhaps they don't quite know how to say it.
I am honored that guest blogger Diane Durkee is sharing this: A WALK TO MY GARDEN I see the stairs and I must go down. Where will they take me? What lies ahead? I fear the unknown. What will I find? What will I see? I know I must go down. One step at a time. There is no turning back From this long downward climb. I’ve arrived at the bottom With closed eyes and clasped hands Am I ready to face my challenges? The future – the past – it’s buried in the sands. I feel a touch, a warm loving touch. A soft voice whispers and I hear “Open your eyes go forward and believe. Continue on your path for there is nothing to fear.” I open my eyes and begin to look! There before me are the flowers and birds, butterflies and bees Beauty surrounds me and […]
I live with a teenager. When he speaks, a one-word grunt is typically accompanied by a shrug. On the rare occasion that a full sentence streams out aloud, it’s riddled with middle-school speak. A combination of texting abbreviations and lingo known only to eighth graders streams out with a tone that emits coolness. The word-nerd in me isn’t satisfied with the coolness factor of the delivery and tries but often cannot parse the meaning. Since there is no Teenage Awareness Month and April is Parkinson’s Awareness Month, I offer the meaning behind a few PD catch phrases. “I have Parkinson’s, but it doesn’t have me.” “Parkinson’s: Fight back.” “Parkinson’s is a word, not a sentence.” Each seems an upbeat summary of what it takes to live well while living with the disease. I’ve used them. But on closer inspection, they’re much like the language of my son with more meaning […]