parkinson’s art

July 3, 2011

Living with Parkinson’s: A Moving Experience

Sometimes, we meet individuals who change us, help us grow more into ourselves. They exude courage, acceptance,  love. These qualities permeate the space between us until we, too, become more courageous, accepting, loving. I spent a full weekend surrounded by more than 40 of these very people. At the first, APDA-sponsored Parkinson’s Disease Arts & Movement Weekend, we gathered not to mourn our losses living with a degenerative disease but to celebrate the abundance of all we have, all we can do, all that we are. Together, we danced, sang, moved through yoga and Tai Chi. We learned to shift perspective of our world to that of a photographer’s eye and to create,  express, and simply play with paint and color. We became, not people with PD, but dancers, yogis,  artists. Courage If courage means letting go of the familiar, courage checked in to the PD Arts & Movement Weekend with […]
August 28, 2011

Modifying Child’s Pose

One of the more restful of yoga positions, Balasana, or Child’s Pose, taps into an inner peacefulness. In Balasana, the spine elongates and the shoulder blades broaden, sending messages throughout the nervous system that relay an overall calming. I can recall a great number of times checking on my son when he was younger. There in his crib, he epitomized child’s pose. With bent knees supporting his upper body, his tailbone touched down between both heels, an arm stretched along each side, and he breathed that full, rhythmic breath of a sleeping child. Someone  with a movement disorder, however, may find this position not only challenging but counter productive. Bent knees can trigger involuntary dorsal flexion in the feet for someone recovering from a stroke. Pressure on the feet of a person living with Parkinson’s or dystonia can result in painful cramping in the toes or plantar area. That said, those […]
December 3, 2013

Yoga, Parkinson’s and a Pair of Pink Gloves

Despite my attempt at a yogic, peaceful approach to life, there are moments when I simply want to haul off and hit something. Hard. Maybe even several times. Yoga helps. But so does boxing. Whether I’m waiting for a dose of meds to kick in, fumbling to zip up a jacket or passing on the scrambled eggs because the protein will interfere with the next dose of meds, the argh moments of life with Parkinson’s disease build up throughout the day. It’s incredible how the frustration dissipates when I take it out on a punching bag. Studies show that exercise is beneficial to PD. “Forced” and challenging workouts such as boxing can be even more helpful. According to the Cleveland Clinic, activities such as boxing ease symptoms and are neuroprotective. Besides the tension release and fitness factor, there’s another bonus. Boxing is actually fun. Seriously, try on a pair of […]
April 4, 2016

Quit the Quick Quips

I live with a teenager. When he speaks, a one-word grunt is typically accompanied by a shrug. On the rare occasion that a full sentence streams out aloud, it’s riddled with middle-school speak. A combination of texting abbreviations and lingo known only to eighth graders streams out with a tone that emits coolness. The word-nerd in me isn’t satisfied with the coolness factor of the delivery and tries but often cannot parse the meaning. Since there is no Teenage Awareness Month and April is Parkinson’s Awareness Month, I offer the meaning behind a few PD catch phrases. “I have Parkinson’s, but it doesn’t have me.” “Parkinson’s: Fight back.” “Parkinson’s is a word, not a sentence.” Each seems an upbeat summary of what it takes to live well while living with the disease. I’ve used them. But on closer inspection, they’re much like the language of my son with more meaning […]