accepting parkinsons

July 3, 2011

Living with Parkinson’s: A Moving Experience

Sometimes, we meet individuals who change us, help us grow more into ourselves. They exude courage, acceptance,  love. These qualities permeate the space between us until we, too, become more courageous, accepting, loving. I spent a full weekend surrounded by more than 40 of these very people. At the first, APDA-sponsored Parkinson’s Disease Arts & Movement Weekend, we gathered not to mourn our losses living with a degenerative disease but to celebrate the abundance of all we have, all we can do, all that we are. Together, we danced, sang, moved through yoga and Tai Chi. We learned to shift perspective of our world to that of a photographer’s eye and to create,  express, and simply play with paint and color. We became, not people with PD, but dancers, yogis,  artists. Courage If courage means letting go of the familiar, courage checked in to the PD Arts & Movement Weekend with […]
August 28, 2011

Modifying Child’s Pose

One of the more restful of yoga positions, Balasana, or Child’s Pose, taps into an inner peacefulness. In Balasana, the spine elongates and the shoulder blades broaden, sending messages throughout the nervous system that relay an overall calming. I can recall a great number of times checking on my son when he was younger. There in his crib, he epitomized child’s pose. With bent knees supporting his upper body, his tailbone touched down between both heels, an arm stretched along each side, and he breathed that full, rhythmic breath of a sleeping child. Someone  with a movement disorder, however, may find this position not only challenging but counter productive. Bent knees can trigger involuntary dorsal flexion in the feet for someone recovering from a stroke. Pressure on the feet of a person living with Parkinson’s or dystonia can result in painful cramping in the toes or plantar area. That said, those […]
September 22, 2011

PD Attitude of Gratitude

  My gratitude list continues: Autumn leaves: Especially the feisty ones, rimmed in crimson and yellow but holding onto veins of green.  They display their nature – our nature – to resist change at the same time surrendering to it. NEPD Ride Volunteers: The New England PD Ride in support of the MJF Foundation proved to be a smooth 50 miles for Team Mama. The route was lined with good cheer, good food, great attitudes. The teams of volunteers providing much heart and help to the Team Fox riders and were probably responsible for the pristine weather. All in all, a delightful day of riding for a cure. Thank you. Elementary School Friends: As my son begins fourth grade, I recall a few friendships solidifying when I walked the halls of St. Christopher’s. I have the priveledge of gathering with two of the dearest of those friends for a whole […]
October 3, 2011

Yabba Dabba Yoga

Yoga, the violin, Fred Flintstone and PD, all in my guest blog at the American Parkinson Disease Association/Massachusetts Chapter site:  http://www.apdama.org/site2.0/blog.php
March 17, 2012

Power Hungry

Topping my Gratitude List these days: Electricity. I wouldn’t be typing this without it. I certainly wouldn’t be typing at this hour (3:12 am) without it. Ultra aware of the nanosecond we lose power in a storm, I rarely appreciate the immediacy of light when I flip the switch, the ease of warm water streaming from the shower, the simplicity of a cup of hot tea. Tap the keyboard: internet. Turn a knob: music. Press a button: the garage door opens. Even my toothbrush plugs in. Do I need all these conveniences? Not likely. But living with Parkinson’s in this age of power makes me thankful that I’m not of an earlier time. PD carries with it enough challenges, imagine adding late night wanderings by candlelight or stoking the stove to boil water. My tremor triggers just thinking about constipation and outhouses. (Another listing under Gratitude: Indoor plumbing.) The yogi […]
November 23, 2012

It’s a Miracle

“There are two ways to live: you can live as if nothing is a miracle; you can live as if everything is a miracle.” – A. Einstein In this season of lists, must-do’s, purchases, I listen for bells. From the Salvation Army ringers to the sh-shing of a cash register, these familiar sounds can be our guides to stop for a moment. To take a breath. How yogic. How necessary when living with PD. In “Peace Is Every Step,” Thich Nhat Hanh suggests we use the sound of bells to remind us to notice. To stop for a moment, take a breath and notice all the little miracles. Let the microwave beep, an elevator ding, someone’s car-locking beep all feed into this pool of reminders. Tis the season of bells and miracles.    
March 7, 2013

When I Grow Up

As a kid, whenever an adult asked me what I wanted to be, I answered – much to my mother’s dismay – A jockey. I, with Secretariat’s victories taped to every inch of my bedroom walls, envisioned my future filled with checkered silk jerseys atop a thoroughbred. My mother, an avid reader, had a more literary career in mind for me, snug in a button-down sweater surrounded by books. Neither of us would have pictured the grown-up me in leggings on a yoga mat. Could they be any more different: racetrack, library, studio?  Plot them out and they’d be separate points on a triangle, equally distant from each other in every way. There are, however, similarities: None are get-rich-quick life choices. Each means no need for expensive suits or uncomfortable shoes. All can be done during regular hours without ever having to be on call. The three derive from one common […]
June 6, 2013

Bad Yoga. Bad.

E. W. Jackson is the Republican candidate for lieutenant governor of Virginia. According to the Huffington Post, his agenda items include yoga warnings: Yoga may leave unsuspecting people vulnerable to satanic possession…. In a post for the National Review on Wednesday, Betsy Woodruff highlighted some quotes from Jackson’s 2008 book Ten Commandments to an Extraordinary Life: Making Your Dreams Come True. Among them was one about the hazards of yoga. “When one hears the word meditation, it conjures an image of Maharishi Yoga talking about finding a mantra and striving for nirvana,” Jackson wrote in his book, according to Woodruff. “The purpose of such meditation is to empty oneself. [Satan] is happy to invade the empty vacuum of your soul and possess it. Beware of systems of spirituality which tell you to empty yourself. You will end up filled with something you probably do not want.” So THAT’S where I got Parkinson’s. Stoopid, […]
September 30, 2013

MJFox Show Post-Miere Hit

Thanks to all for the fun and support at the MJFox Post-miere party! Though we gathered two days following the airing of the new TV series, the Saturday afternoon time made it easier for people to come and celebrate. The Thursday time was late (after 8:30! meds wane!) and it was on a school night (after 8;30! my eleven-year-old whines!)  Special thanks to Matt and Alison of Brassiere 28, of Andover, MA, for hosting on a weekend. While people gathered to watch, laugh and share stories, the front room of the restaurant glowed from both the sun streaming in and from the spirit within. As a special treat, Bruce Cook, MD, announced that he’d asked Michael if he could phone us during the celebration (unfortunately, he was in a plane at the time of our event).  Dr. Cook is a neurosurgeon and Michael was his patient. Bruce and his wife, Karla, shared a few stories […]
December 3, 2013

Yoga, Parkinson’s and a Pair of Pink Gloves

Despite my attempt at a yogic, peaceful approach to life, there are moments when I simply want to haul off and hit something. Hard. Maybe even several times. Yoga helps. But so does boxing. Whether I’m waiting for a dose of meds to kick in, fumbling to zip up a jacket or passing on the scrambled eggs because the protein will interfere with the next dose of meds, the argh moments of life with Parkinson’s disease build up throughout the day. It’s incredible how the frustration dissipates when I take it out on a punching bag. Studies show that exercise is beneficial to PD. “Forced” and challenging workouts such as boxing can be even more helpful. According to the Cleveland Clinic, activities such as boxing ease symptoms and are neuroprotective. Besides the tension release and fitness factor, there’s another bonus. Boxing is actually fun. Seriously, try on a pair of […]